Home / Letters from Friends

Letters From Friends

 

We get a lot of letters from folks, but these are a few letters which may help you understand what people go through.

 

Records 31 to 35 of 36

Thank you so much for your website. I'm a 54 year old female that was diagnosed with melanoma in my left eye on Oct. 25, 2000. It was a whirlwind of tests, second opinions and before I could turn around good I was in the hospital 2 weeks later to have my eye removed.

Like all of you, I was very afraid of having the wrong eye removed. My Dr. assured me that he intended to go all his career without doing that. He went thru all the steps that they would go thru. It was a tremendous help. Even though they had marked my eye to be removed with a dot-he came in and asked me which eye, he looked to make sure and then he took a big huge black marker and drew around my eye. That alone was reassuring.

The difference for me has been-he wanted to wait for 8 weeks to make sure my eye had healed to get my prosthesis. My eye has a clear plastic shield where the prosthesis will fit. I've worn an eye shield over the outside of my eye while I have been waiting. Things were ok until this past week when it just became too prolonged. I replaced the shield with an eye patch. It is much better. I'll be getting my prosthesis on Feb. 9. That will be one proud day for me-like Christmas, birthday and all the holidays wrapped into one.

Thanks so much to Jay for providing this website. I now know what to expect and am looking forward to it without any fear of the unknown.

Its really good to know all of you have gone thru this before me. It gives me hope and lets me know there is a lot of life left to live.

Thanks,

Frances

Dear Jay,

Your web site is most useful. You are young and I am glad that you are doing so well.

My dad is 90. He lost his eye from a stroke and had it removed. He now has a ocular prosthesis which is like a disk that can be removed to clean, etc. Its an exact copy of the other eye and a stranger cannot tell it is false.

My question is:

DO you know how they clean the prosthesis? what do they use. This Dr that made it wants my dad to come in twice/year and spend $80 to clean it during a 5 minute visit. My dad cannot afford that. Would you know how best to clean it w/o damaging it??

There was a good medical site from Pennsylvania that described eye and eye removal problems but I don't have it 's web address, but it was a medical center for eyes that had a great deal of patient info that was useful prior to my dad's surgery. It told us more than the DRs.

Jay,

I have to thank you for all the information on your website.

A week before Christmas, I was diagnosed with a tumor. It was so big I had to have my right eye removed immediately. At 25, this has been quite an experience. The great thing about your website is that every fear and phobia you mentioned, I have had. Next month, I fly to Utah for a prosthetic, and the fact that I know what to expect is priceless.

Incidentally, I live in SoCal as well. Do you know A good oncologist in the area? I would like to find one who comes recommended.

Thank you so much for your website.

I'm a 54 year old female that was diagnosed with melanoma in my left eye on Oct. 25, 2000. It was a whirlwind of tests, second opinions and before I could turn around good I was in the hospital 2 weeks later to have my eye removed.

Like all of you, I was very afraid of having the wrong eye removed. My Dr. assured me that he intended to go all his career without doing that. He went thru all the steps that they would go thru. It was a tremendous help. Even though they had marked my eye to be removed with a dot-he came in and asked me which eye, he looked to make sure and then he took a big huge black marker and drew around my eye. That alone was reassuring.

The difference for me has been-he wanted to wait for 8 weeks to make sure my eye had healed to get my prosthesis.

My eye has a clear plastic shield where the prosthesis will fit. I've worn an eye shield over the outside of my eye while I have been waiting.

Things were ok until this past week when it just became too prolonged. I replaced the shield with an eye patch. It is much better. I'll be getting my prosthesis on Feb. 9. That will be one proud day for me-like Christmas, birthday and all the holidays wrapped into one.

Thanks so much to Jay for providing this website. I now know what to expect and am looking forward to it without any fear of the unknown. Its really good to know all of you have gone thru this before me. It gives me hope and lets me know there is a lot of life left to live.

Thanks Frances

Hello,

I've had an artificial eye for over 20 years and am in need of a new one. I was hoping you'd tell me what your guy in Tustin charges for an eye. I live in rural northern CA and there is a service that does a "circuit" around this region, making eyes. They charge $2800 and I want to see if that's low, high, average or what. Any help/info you can share would be greatly appreciated.

Thanks

 

 


Lost Eye Book

Lost Eye Book


Sonic Brite


Ocular Prosthetics