I want to thank everyone who has responded to my post about my daughter so far. I hope I am not offending anyone by putting posts up on this website, since I am not the one who had my eye enucleated. I don't know of another place to go....

I just have a lot of questions since I don't know exactly what my daughter is experiencing, and I thought you guys could help out. BUT the last thing I want to do is upset anybody, so please let me know if this is NOT the place for me. OK?

As Emily gets older (she's still just 2 and 1/2) she'll become more verbal and then she can tell me more of what she's going through herself. Then I promise I won't bother you guys as much!!!

Thank you again for welcoming me so far, and PLEASE let me know if this is the wrong place for me to be.

Em'smom....

Banish that thought from your head at once! lol.

Of course you are welcome here, there are a couple of members on here who are in exactly your situation - Lauren, for her daughter Isabell, Donovan's Angel, for her son Noah, and there are a few others too (sorry guys, too early in the morning to get the old brain creeking into action!lol)

This is exactly the place for you, as we can all share experiences and thoughts on what we have been through, so you can watch for that with Em, and for the times when she flushes her prosthetic down the loo, or throws it out the car window (its happened! lol) this is the place where you'll come and rant about it, and we'll all be here to listen.

As for upsetting anyone - this discussion forum is for exactly that, discussion. We learn through others experiences, and we share stories, laugh and cry together.

For anyone going through the loss of an eye/sight in an eye, its a huge deal - and while family support can never be replaced, I doubt that I'd be speaking out of turn when I said that everyone here finds this place an invaluabe 2nd home for all things eye related.


Hope that helps!



All The Best,



Elizabeth.

this isnt a place for onle people with one eye, its a place for those who have been affected, or not, by people losing, or even losing just the sight (like me) in one eye.

What a silly thought! Of course you're welcome here. I think this site is a great source of information and support. Over time, I bet neither you or Em will need the support but this place will always be a great place for information.

Take care and post any time,
Amy

You are more than welcome here! Your here to gain information and offer support to Emily when she needs it. There are some members who have joined to get info for their husband, wife etc. So, please petal don't think you are in the wrong place. Your definitely not!

Best wishes!

You are more then welcome here, As was said, this is a place for anyone who has been affected by the loss of an eye, wheather it's yours or a loved ones!!!

Cead Mile Failte (Gaelic/Irish : A hundred thousand welcomes)
and you are definitely in the right place at the right time; cheers Vera

Hi there Em'smom!!

I wondered that same question when I first found this website....but yes you are welcome here. I am in the EXACT same boat as you!

My daughter Isabelle 2 1/2 (just like your daughter) had her left eye removed when she was 3 weeks old. She had PHPV and also Microthalmia. They thought she might have RB, and the only way to rule that out was to remove the eye. At that time it was the scariest and hardest decision I ever had to make in my life!!! But I'll tell you what...never again will I think that! I am SO glad we did it when we did. She is done with surgeries and is now living a happy "normal" life!!

If you have any questions...everyone one here is REALLY helpful! and if you would like to talk more since our girls are close in age, feel free to email me at morgansmommy5@yahoo.com

I'm sorry to hear about your daughter, but happy that you found us, and I hope you continue to stay!

yay for people feeling welcome.

Yes, yay to ALL of you for making me feel welcome. This is an invaluable website. Thanks so much!