Hi again - my patches from Anissa's Fun Patches just arrived. For anyone out there who wears glasses and a patch, these things are fantastic! Comfortable, excellent coverage, not as obtrusive as traditional pirate patches.

http://www.anissasfunpatches.com

I'm having another uveitis flare-up at the moment (started Saturday, I think) and am VERY light sensitive, so these came at just the right moment.

Medical questions for Irishangel and other wise people - I saw that uveitis in horses is often called moon-blindness, because it recurs so regularly. A search on "moon-blindness" led me to "hemeralopia", which on some sites means "inability to see clearly in bright light" and on others (less commonly) means "A disease of the eyes, in consequence of which a person can see clearly or without pain only by daylight or a strong artificial light." First, which way is the word most commonly used? And second, if it's "inability to see clearly in bright light," does it make sense to say that I have hemeralopia as a consequence of uveitis? Or should I stop trying to be pretentious and just call it "light sensitivity"?

Ya'ara

I always called it photophobia.

Hiya Ya'ara!

Sorry I missed replying to this post, becuase of the internet problems here etc.
Boy Ive missed having craic on here with you! lol.

I think Maramalade is right, I'd call it Photophobia and we would generally say about anyone presenting with light sensitivity that they are "Photophobic".

However, From my research on Hemeralopia it appears that it IS a condition on its own, and has its night-blindness counterpart mentioned too: Nyctalopia.

I will keep looking into it, but Id say that your problem is Photophobia as it is a major symptom in the presentation of Uveitis.

How is your itis anyway petal?

Luv n Hugs,


Elizabeth.

Hi Elizabeth!

My itis is behaving. I'm down to a drop of Maxitrol (dexamethasone, polymyxin, neomycin) every other day, and aside from some sporadic aching in my eye and socket, it seems to be working well. The bummer is that soft contact lenses and Maxitrol apparently don't mix, so I really am stuck in these glasses-compatible patches. I like them, but there are times when I'd like to be a little less conspicuous.

I'm seeing a U.S. doc on March 29 and am hoping that 1. she'll tell me I need an opaque intraocular lens 2. my insurance will cover it and 3. it will miraculously solve all my patching problems forever.

How's your itis?

Hugs,
Ya'ara

Well, its calm atm, Im HOPING that they'll tell me at my next visit that its in Remission (sustained with meds) but like you I also get the aching!

Because of my lens the hosp gave me Preservative Free Dexamethasone (also the tears Im on are Preservative Free too) So it might be worth looking into that? I use the Dex every day, normally twice but it can be up to 4-6 times with the lens in, and although it burns a bit at the start I have no long lasting problems.

You know my reservations bout the opaque intraocular lens, and so I dont need to repeat them. But especially now with your history of Uveitis I would really be careful about having any intraocular surgery. I didnt have uveitis before mine and look what happened! They now say that If I can get away with never having another intraocular procedure then thats the best option (but straight after the doc said that he then laughed and said if only!)

Hope you can maybe get somewhere with preservative free drops so that your lens can be made use of.


Love n Hugs to ya,



Elizabeth