Login | Register

Post new topic Reply to topic  [ 27 posts ] 

Sun Nov 12, 2017 7:55 pm

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

I'm going for the 1st time this week to a Retina specialist for my "good" eye. I think that my Oculoplastic surgeon suggested this since I have had a nevus for a while now. Although it hasn't changed, she wants to make sure that my eye is healthy.

Does anyone else see a specialist for their good eye?

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Sun Nov 12, 2017 11:45 pm

Offline
User avatar
Joined: Mon Jan 05, 2015 3:10 pm
Posts: 2210

Chris, I go to my Retina Specialist, Dr. Alan Uliss, in Queens, NY every 6 months to check my good eye and also take out my prosthetic and he checks out my socket...you can Google him...wonder if our Specialist know of each other...Lil

_________________
_____________________
Choroidal Melanoma Tumor that was 3/4th
in size covering my retina and detached it.
I was diagnosed on July 3, 2014 and had my
Enucleation July 9, 2014 (Female 64)



Top Top
  Profile

Mon Nov 13, 2017 5:27 pm

Offline
Joined: Tue Aug 24, 2010 10:23 pm
Posts: 430
Location: New Orleans

It is highly recommended. Retina specialists can spot problems that a regular eye doc can miss.

Mine found macular degeneration in my "good" eye about two years ago. It was in an early stage and was not yet having an effect on my vision. My regular doc had missed it.

I get injections (not as bad as it sounds) every six to eight weeks that has kept it from progressing, and has actually improved my vision. He has equipment (retinal scanner) that is far more sophisticated than a regular doc has.

_________________
M 71. Enucleation 7/10/2010 following uncontrolled fungal infection.


In the land of the blind, a one-eyed man is king.
Erasmus



Top Top
  Profile

Mon Nov 13, 2017 10:37 pm

Offline
Joined: Sun Mar 25, 2012 9:33 pm
Posts: 30

When I first had my retinal detachment;that’s when I was sent down to Jackson to see one of the retina doctors down there.He kept tabs on both my eyes.I used to see him every month, then 3 months and now just once a year to keep tabs on my good eye.So,it’s now been 10 yrs that I’ve been seeing him.Can’t believe it’s been that long.

_________________
Retina detachment in 2007 along with various surgeries.Evisceration June 2012 and prosthetic in August 2012.



Top Top
  Profile

Tue Nov 14, 2017 5:48 am

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

Lil: Thank you, sweetie! I could only WISH I'd be back in NYC, seeing my doctors there.... I'm sure you have one of the best!!

jgmpuma: Thank you. I didn't know a lot of that! I used to just get my "good" eye checked with my Oculoplastic Surgeon. I was allergic to the dialiating drops many years ago, but he had ways of looking behind my eye and checking it thoroughly and I felt relieved. He kept tabs on the nevus and it hasn't grown, and my vision hasn't really changed since I was 14. I did begin to have issues with my close-up vision when I hit 55, but that's it....... I guess it's good to make sure that eye is healthy.

pezhead28: Are you supposed to see a retina doctor once/year??? This might be a reminder to go! I'll see if they say I'm supposed to go yearly...... It's scary when it's your only eye with vision, and I thought that everything with that eye was fine, but I guess it doesn't hurt to check it out.

Thanks all! Good health wishes to you all!

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Tue Nov 14, 2017 1:02 pm

Offline
User avatar
Joined: Mon Jan 05, 2015 3:10 pm
Posts: 2210

Have a great checkup, Chris, every time you go...Lil :roll:

_________________
_____________________
Choroidal Melanoma Tumor that was 3/4th
in size covering my retina and detached it.
I was diagnosed on July 3, 2014 and had my
Enucleation July 9, 2014 (Female 64)



Top Top
  Profile

Wed Nov 15, 2017 8:23 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

If I go to an ophthalmologist, only my real eye is examined. If I go to an oculoplastic surgeon, only my prosthetic eye is examined. It always annoys me, I get charged the same as someone who has both eyes examined, but the ophthalmologist only looks at one! (I can understand the oculoplastic surgeon only looking at my prosthesis/implant but he could take a look at my real eye, couldn't he?)



Top Top
  Profile

Thu Nov 16, 2017 10:23 pm

Offline
Joined: Sun Mar 25, 2012 9:33 pm
Posts: 30

Yep,I only go once a year now;unless I’m having problems.I’ve already had my yearly checkup back in May.Now just going next week to the occularist for a cleaning and checkup.

Polly:Maybe next time you could just ask the surgeon if he could look at your real eye as well from now on.That way,you’d only have to go to one doctor instead of two and have only one bill.

_________________
Retina detachment in 2007 along with various surgeries.Evisceration June 2012 and prosthetic in August 2012.



Top Top
  Profile

Thu Nov 16, 2017 11:04 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

pezhead28 wrote:
Polly:Maybe next time you could just ask the surgeon if he could look at your real eye as well from now on.That way,you’d only have to go to one doctor instead of two and have only one bill.
I'm going to try that! I'm seeing a new oculoplastic surgeon next month, I'm hoping he'll agree to enucleate my eye (it was eviscerated, but it had been through over four years of surgeries, treatments, etc, so the scleral shell had shrunk). But my real eye hurts too, so I'd like him to check it out. The lost eye seems to hurt right in the middle, I don't understand that at all!



Top Top
  Profile

Sat Nov 18, 2017 9:50 pm

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

Polly: I agree! You have to ASK for them to check your good eye and get an Rx for glasses. I got this done and this was the 1st time I got the dilating drops (I'm normally allergic), and they worked quickly....... That's why I was perplexed as to why I'd have to see yet another specialist when I don't really have a problem..........

Lil: I didn't get in to see the Retina specialist because they didn't have the proper referral from my primary dr. Oh boy--it took my husband 45 min to drive me there and he's not feeling well, and we waited so long, only to find out that I couldn't see her! Live & learn--now I'll double check ALL appts with my primary FIRST!

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Sat Nov 18, 2017 10:38 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

Chris wrote:
Polly: I agree! You have to ASK for them to check your good eye and get an Rx for glasses. I got this done and this was the 1st time I got the dilating drops (I'm normally allergic), and they worked quickly....... That's why I was perplexed as to why I'd have to see yet another specialist when I don't really have a problem..........
Chris, it never occurred to me to ASK! I think our way of dealing with our doctors is changing. Years ago, you'd never ask a doctor to do something or suggest a diagnosis. Nowadays, I think the doctors are more receptive, they understand that we can use Google and study our own conditions before we see them!

As to the glasses Rx, I used to see an ophthalmologist who always did an eye exam and gave me a prescription. The last time I went there, there was a sign in his office saying that there would now be a $49 charge for a vision exam with prescription. I think the optometrists at the malls charge a lot less than that and they do a different set of exams than the ophthalmologist. The ophthalmologist I was seeing specializes in cataracts, he didn't check my pressure or field of view but the optometrist at the mall did!

The new guy (oculoplastic surgeon) I'm going to see is in a group practice. I don't think I'll get a glasses Rx from him, they have optometrists in the office. I wouldn't mind paying for that exam though, my headaches are probably related to my vision.

You have my sympathy on your appointment being messed up. I've been forgotten in the waiting room for over an hour on one occasion, another time I was told I didn't have an appointment (I had the appointment card in my pocket that time!).



Top Top
  Profile

Sat Nov 18, 2017 11:13 pm

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

Polly: I DO agree with you about some Optometrists. I usually don't say anything and wait to see if they spot my nevus. If they do, then I assume they're decent. They don't, however, know too much about diseases of the eye. They're not M.D.s. With our situations, we should really go to our Oculoplastic surgeons to check on our "bad" eye, and ask them for a vision test on the good eye. It does save you an extra eye dr apt! Use the Rx from that to get new glasses if you need them.

The tests that Optometrists do seems to be all fluff to me. I feel safer going to an M.D. to get checked out. I don't think that they need to do the puff of air in your eye-thing to check you.

As far as any additional specialists (like a Retina doctor), I suppose that's in order if you have issues with your good eye..........

SO many doctors, so many appointments, so many co-pays, so many pre-approvals...........

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Sat Nov 18, 2017 11:33 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

Chris wrote:
With our situations, we should really go to our Oculoplastic surgeons to check on our "bad" eye, and ask them for a vision test on the good eye. It does save you an extra eye dr apt! Use the Rx from that to get new glasses if you need them.
The oculoplastic surgeon who removed my eye wasn't interested in seeing me again after the post-op visits. I think there were two, the second one was maybe two months after the surgery but I really don't remember. I don't think he had the equipment to do a vision exam.

Chris wrote:
The tests that Optometrists do seems to be all fluff to me. I feel safer going to an M.D. to get checked out. I don't think that they need to do the puff of air in your eye-thing to check you.
But then you have to go to an ophthalmologist and they all specialize (at least the ones I know), so you go to the cataract guy, or glaucoma, or retina... All the ones who used to be "general ophthalmologists" do lasik now!

Chris wrote:
SO many doctors, so many appointments, so many co-pays, so many pre-approvals...........
I have a rheumatologist, a neurologist, etc... so I'm hoping at least I'll be able to get my remaining eye checked when I see the oculoplastic guy, even if not by him, maybe by somebody else in the practice.



Top Top
  Profile

Sun Nov 19, 2017 12:27 am

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

Polly: I always had my Oculoplastic surgeon check my good eye and do an exam. He didn't even have to dilate the pupil to check it! I did an eye test and everything was fine. This new surgeon did the same thing, although she insisted I try the new dilating drops and they were fine. I read the eye chart and she checked the eye for diseases. They SHOULD be able to check the good eye for diseases.........

I go to my primary every 3 months for bloodwork (I had high blood pressure for 15 years but now it's actually low! I have slightly high cholesterol, COPD, GERD, asthma, diverticulosis, hormone imbalance due to hysterectomy, etc............), and I go to a Pain Mgmt doctor every 3 months for Rx's. He checks my bloodwork from my primary to make sure I'm only on the pain meds he gives me. It's pretty severe that you adhere to the rules or you're out! I also go to the Oculoplastic surgeon when I need to (I'll be going a lot until I'm all healed and finished), and I visit the Ocularist 2x year, but I need to find a new one. I also go once/year for a mammography (b/c I'm on hormones) and get a colonscopy every few years.........

I'm still SO overdue to begin dental work (it's not covered, at all),, and I'd prefer to go to a cardiologist and pulmonologist and gynecologist, but I don't normally get to go......... It's a lot just to keep up with our own health, isn't it???

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Sun Nov 19, 2017 1:45 am

Offline
User avatar
Joined: Mon Jan 05, 2015 3:10 pm
Posts: 2210

Wow Chris, not getting a proper referral...so sorry your husband drove all the way and him not feeling well...wish they could have called for you since you were there already and fax the correct referral, etc. xo Lil

_________________
_____________________
Choroidal Melanoma Tumor that was 3/4th
in size covering my retina and detached it.
I was diagnosed on July 3, 2014 and had my
Enucleation July 9, 2014 (Female 64)



Top Top
  Profile

Sun Nov 19, 2017 6:27 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

Chris wrote:
Polly: I always had my Oculoplastic surgeon check my good eye and do an exam. He didn't even have to dilate the pupil to check it! I did an eye test and everything was fine. This new surgeon did the same thing, although she insisted I try the new dilating drops and they were fine. I read the eye chart and she checked the eye for diseases. They SHOULD be able to check the good eye for diseases.........
I was in this situation once before, I went to a specialist ophthalmologist in a group practice and I asked him if I could get a prescription for glasses for my good eye. He said he couldn't do that because they had optometrists (and an optical shop!) there, so he would be taking business away from them. If you go to a sole practitioner, you have a better chance - but as I said, the one that I know now charges extra for a glasses prescription (and it's not covered by Medicare).

Chris wrote:
I go to my primary every 3 months for bloodwork (I had high blood pressure for 15 years but now it's actually low! I have slightly high cholesterol, COPD, GERD, asthma, diverticulosis, hormone imbalance due to hysterectomy, etc............), and I go to a Pain Mgmt doctor every 3 months for Rx's. He checks my bloodwork from my primary to make sure I'm only on the pain meds he gives me. It's pretty severe that you adhere to the rules or you're out! I also go to the Oculoplastic surgeon when I need to (I'll be going a lot until I'm all healed and finished), and I visit the Ocularist 2x year, but I need to find a new one. I also go once/year for a mammography (b/c I'm on hormones) and get a colonscopy every few years.........
All my primary does is refer me to a specialist if I have any problem at all and she'll have blood drawn for any tests that I want. She'll explain things to me but won't treat anything, she always wants to send me to another specialist and I already have too many (my husband has to take a day off work to take me to a doctor, so even when insurance covers the visit, it's still expensive!)

And I'm in the same situation, I need to find a new ocularist. The one I've been seeing didn't send the claim in the last time I had a cleaning and when I called the office about it, the manager (the ocularist's brother) yelled at me and told me he would have sent it. I asked him to send it again because they didn't get it (because he didn't send it). He didn't send it again and my only option was to file a complaint against them with Medicare, which I didn't want to do, so I was out $100. I need a new prosthesis, mine has had a delaminated spot right in the center since I got it five years ago.

Chris wrote:
I'm still SO overdue to begin dental work (it's not covered, at all),, and I'd prefer to go to a cardiologist and pulmonologist and gynecologist, but I don't normally get to go......... It's a lot just to keep up with our own health, isn't it???
I got in the same dental situation - I had laminates that were way past their lifespan and they started to crumble! I had all my upper teeth (that showed) crowned. They're gorgeous, I found a dentist who's a genius! Of course it cost a fortune but I got it all done in one calendar year so it was enough to bring the taxes down quite a bit!

Yes, I agree, we reach a point in life when we require a lot of medical care. That's why we have such a terrible healthcare crisis, there's too many people at that point in life and not enough doctors to go around. Just notice the signs when you go to the doctor offices "No more Medicare patients being accepted" and "No Medicaid patients accepted"! I'm seeing more of those signs, new people getting on Medicare are going to have to travel even further than I do! And they're going to have to make a lot of calls to find a doctor, if they're not already established with one, and many people here are not because they couldn't afford (or couldn't get) insurance and then they got Obamacare which they couldn't use (high deductibles).

So a lot of people have been going without medical care but someday they're going to be forced to go to a doctor or the hospital, and those high deductibles are going to be impossible for them to pay. What happens then?



Top Top
  Profile

Mon Nov 20, 2017 1:12 am

Offline
Joined: Fri May 13, 2016 2:04 am
Posts: 45
Age: 27
Location: United States

Hi Chris,

I have been seeing a retina specialist for the past 10 years to monitor my "good" eye for Uveitis flare ups and retinal detachments because like others have mentioned, they have the tools to pick on things that can be overlooked by standard optometrists and ophthalmologists.

_________________
27/Female. Left eye: Uveitis and Cystoid Macular Edema. Cataract removal with IOL 2/2009; Vitrectomy 8/2009. Right eye: Traumatic Cataract and Optic Neuritis. Evisceration 5/2016, Prosthetic Received 7/2016



Top Top
  Profile

Mon Nov 20, 2017 5:21 am

Offline
User avatar
Joined: Tue Jun 24, 2003 2:36 pm
Posts: 819
Age: 57
Location: USA

Symptom_Unknown : Thank you. This is my first experience with a specialist for my good eye. I always got a regular eye exam, got my Rx and that was it. Makes me nervous to think they might be looking for something with that eye, but I'll go and check it out ($40 later, at least!!). Thanks!

Lil : Thank you, always, for your love and support, I adore you!

Polly : All interesting information! My take on current Medicare annoys the heck out of me!!!!!!! I am pretty sure that I could be off of opioids if they'd approve of massage therapy or some alternate type of relaxation help. No meds work unless they're SUPER strong, but I do have to drive and function for now. Botox truly helped but Medicare is really making that difficult! Makes no sense!!!! Instead they pay over $100 per pill for just 1 of my Rx's for my "rescue" Rx. Does that make sense??? When I got the Botox, I didn't need a rescue Rx for almost 3 months!!! They should cover the cost of the Botox, 100% and they'd be saving a lot of $$ and I'd be saving many, many days of excruciating pain in bed.

Medicare already has ALL documentation on my medical history to know that this isn't any scam. I follow protocol and take my meds as directed. Still, they can't think outside the box, and I keep trying to have them change their rules, but it's hard! I'm thrilled enough that I got 1 Rx approved and it was the REAL Rx; not the generic (which didn't work). I'm thrilled that I got 2 surgeons who weren't affiliated with my Humana plan approved. I went thru Humana's lame eye doctors, all of whom had NO idea what to do with me. With much paperwork and fighting, I got these surgeons approved. Yeah! Takes a lot to fight the system, which is stupid!

As far as dental, yeah, we're in a real bind with Medicare, huh? My husband has needed to fix his crown for a few years now. We just don't have a few thousand $$ lying around. They don't take payments here either, so it's impossible. HOWEVER, I did find 2 clinics here that take you. It's never discussed, and I found it through a local Facebook page! I have to get us signed up and then we'd have to wait for the dental appts. They do charge a sliding scale fee, which is also silly. My daughter has $0 and isn't working and she still has to pay $20 for most dr appts there, but it's great--she got a bloodtest that we've put off because it's about $200, but here it was only $20! I think I've stumbled on a local secret and they probably have it in most States/Counties. Check it out and see if you have one! All you have to do is to provide your tax returns or your SS paper. I wish you the best luck there!!

_________________
~Chris~
F/56/Happily Married/enucleation 44 years ago- bb gun accident. Going to replace old implant due to severe changes in my socket. Hoping for the best, while thanking Dr. Slonim for his constant sage advice!



Top Top
  Profile

Mon Nov 20, 2017 11:26 am

Offline
User avatar
Joined: Mon Jan 05, 2015 3:10 pm
Posts: 2210

Chris, I hope 2018 is a better year somehow for you and hubby and your children, too...xo Lil

_________________
_____________________
Choroidal Melanoma Tumor that was 3/4th
in size covering my retina and detached it.
I was diagnosed on July 3, 2014 and had my
Enucleation July 9, 2014 (Female 64)



Top Top
  Profile

Mon Nov 20, 2017 6:51 pm

Offline
Joined: Wed Jul 31, 2013 6:22 pm
Posts: 96
Location: Colorado 8750'

Chris wrote:
My take on current Medicare annoys the heck out of me!!!!!!! I am pretty sure that I could be off of opioids if they'd approve of massage therapy or some alternate type of relaxation help. No meds work unless they're SUPER strong, but I do have to drive and function for now. Botox truly helped but Medicare is really making that difficult!
Chris, I understand you, I have rheumatoid, psoriatic, and osteoarthritis. The first two are auto-immune diseases, calling them "arthritis" is misleading. But it comes down to an immense amount of pain! So I'm on opioids, too. My husband just asked me to ask the doctor to either increase my Fentanyl dose or change it from a patch every 2 days to every 36 hours, because on the mornings I get a new patch, I'm in such agony he can't get me to sit up or anything...and he has to get to work. Last night I tried taking an oxycodone at bedtime but they keep me awake so that didn't work very well!

I don't know what you want the Botox for but it must be something that Medicare has not approved Botox for. I get Botox every three months for migraines. All you have to do is go to a neurologist, say you have migraines too often for the medications, and you get Botox. So if you need it in your forehead, it would be easy! (I tried going off it and ended up in a continual migraine. I got the Botox one week ago and it's beginning to work. It's a miracle.) Have you found the list of conditions Botox is approved for? Is there any way you can get a doctor to give it to you and code it for one of those conditions?

Chris wrote:
I'm thrilled enough that I got 1 Rx approved and it was the REAL Rx; not the generic (which didn't work). I'm thrilled that I got 2 surgeons who weren't affiliated with my Humana plan approved. I went thru Humana's lame eye doctors, all of whom had NO idea what to do with me. With much paperwork and fighting, I got these surgeons approved.
That is totally amazing! You must be very persuasive and persistent! I've never heard of anyone getting anything that was in the "not approved" list. You give me hope.

Chris wrote:
As far as dental, yeah, we're in a real bind with Medicare, huh?
I heard someone say this, it's perfect - "Medicare regards teeth and eyes as unnecessary accessories!" (She was talking about getting glasses, not eye surgery.)

Chris wrote:
HOWEVER, I did find 2 clinics here that take you. It's never discussed, and I found it through a local Facebook page!
Yes, such places do exist! They are very difficult to find, you can search the internet, as you did, or call the local charitable organizations.

Chris wrote:
They do charge a sliding scale fee, which is also silly.
It's probably required by some regulatory agency!

Chris wrote:
Check it out and see if you have one! All you have to do is to provide your tax returns or your SS paper. I wish you the best luck there!!
We have the dental school, if you can get accepted there, you can get your work done for a fraction of what it would have cost. But for now, we're doing okay. When I got on Medicare (through disability), I got a Supplement Plan F, so my only problem is the prescriptions that aren't covered. My neurologist's assistant showed me how to get around that with GoodRx! And my husband had a lot of surgeries back when we had catastrophic insurance. His deductible was $500. He had surgery on his shoulder, knee, thumb, a hernia, and three heart operations! Now he can't go to a doctor except his cardiologist, he's been with them so long, they still give him a big discount (it used to be the "self-pay discount" that's mostly gone because of Obamacare).

By the way, you mentioned Medicare and Humana plan. You're not on a Medicare Advantage plan, are you? The Supplement Plan F is what you probably need - you can go to any doctor, no copays, no deductible, it's all covered. You go to someplace like Medigap360 to get some help finding one you can afford until you get to regular Medicare age and then you can get a cheaper plan. But you need to talk to an agent and make sure you get the right plan. The open enrollment ends soon, so don't put it off if it's something you need to look at.



Top Top
  Profile
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 27 posts ] 

All times are UTC


Who is online

Users browsing this forum: No registered users and 11 guests


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum


Search for:
Jump to: