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Thu Feb 09, 2012 6:53 pm

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I have just been doing some reading on new treatments that may slow the spread of choroidal melanoma to other parts of the body, ie. liver and was wondering if anyone else who had lost an eye to this disease had heard of it or had treatments that they felt helped.

http://www.sciencedaily.com/releases/20 ... 171222.htm

Thought some of the other survivors may be interested in this one and I, being new to this, would welcome all opinions from those whe have been where I am now.

Thanks Guys and Gals,

Troy

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Eye removed January 16, 2012 due to Choroidal Melanoma


Last edited by Willis on Sun Dec 16, 2012 8:32 pm, edited 1 time in total.
edited topic subject title from Chorloidal to Choroidal



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Fri Feb 10, 2012 3:01 am

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One Eyed Leprachaun
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Hi Troy; very interesting study and hopefully it will come about quickly. It will certainly help in the fight against eye cancer/metastasis and the slight side effects sure beats chemo. Thanks for posting. cheers vera

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f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
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rukus



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Fri Feb 10, 2012 9:36 pm

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Glad to see there will be another weapon in the arsenal to fight these cells. Sounds promising.

In reading the article I am again reminded of how blessed I am to have survived this for the amount of time I have. The fact that cells can remain dormant for years is obviously the reason they tracked my progress for 10 years.

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Enucleation of left eye due to malignant melanoma 1/28/86



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Fri Feb 10, 2012 9:45 pm

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One Eyed Leprachaun
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Hi Troy; great pic. cheers vera

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f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
--
rukus



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Sat Feb 11, 2012 12:35 am

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Vera,

That picture was taken New Years Eve, 12 days after I found out I would probably lose my eye to cancer. My son got the freaky plastic eye out of one of those cheap Christmas crackers that you both hold one end and pull to make it snap. It was in my sons cracker and he gave it to me. Some in the room were shocked but it made the best of a bad situation.

I kept that eye with me the entire time, through the surgery, and when I left the hospital I taped it to my glasses to hug all the nurses goodbye.

When I finally said goodbye to the doctor, I gave him the plastic eye and said you might as well have this one too!

Live Happy!

Troy

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Eye removed January 16, 2012 due to Choroidal Melanoma



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Sat Feb 11, 2012 12:48 am

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One Eyed Leprachaun
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Hi Troy; I would be the same and I was. In the before-op room where they check your details I asked for the marker. I marked the eye to be removed on my forehead (down arrow) and up arrow on cheek. Apparently when I was wheeled in my specialist cracked up but the nurses weren't. He said "She's Irish and just wants to be sure; to be sure". I was waiting to pick up my eye on Christmas Eve and my friends had been singing forever "all she wants for christmas is her new left eye"; Live happy is a very good motto or make the best of what is. Cheers Vera

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f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
--
rukus



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Sat Feb 11, 2012 11:05 am

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well!!!!! i was feeling happy until i read this post!!!!!
just a reminder that not all cancers are the same...
some are agressive type some arnt....

i think its best not to scare folk.if i may say,,
although i know u mean well.

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Enucleation March 2010 london uk



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Sat Feb 11, 2012 1:56 pm

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Topic is pretty clear on this one. Many of us have lost an eye through the same nasty affliction.

With eye cancer you takes the good with the bad.

Not intended to frighten, just share the knowledge.

Igonorance is not bliss!

If this post is not appropriate for this group, however, I will remove it.

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Eye removed January 16, 2012 due to Choroidal Melanoma


Last edited by righteyeleft on Fri Feb 17, 2012 1:01 pm, edited 1 time in total.


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Sat Feb 11, 2012 2:38 pm

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Hey Troy,
Love your pic and your sense of humor :)
Hmmm for me personally Im glad you put this info up. When I see oncologist next month Im going to ask some questions about what was written up about my melonoma as ive never really asked too much. Im also thinking about printing off that info and taking it with me.
Hey Vera,
Kim asked my specialist day of surgery to please mark the eye to be removed and specialist already had marker in hand to do just that.

Cheers Raylene xxx



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Sun Feb 12, 2012 2:11 am

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One Eyed Leprachaun
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Hi Troy; it is appropriate to share here on LE; the good and not so good. You've already given raylene some good info to ask her specialist. Some specialists leave you in the cold with half answers; because we the patient don't know the q's to ask.
cheers vera

_________________
f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
--
rukus



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Sun Feb 12, 2012 10:12 am

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Troy and Vera,
Ive also printed off the info and going to take it with me.
Raylene xxxx



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Sun Feb 12, 2012 10:18 am

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well done Raylene; like a scout be prepared. cheers vera

_________________
f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
--
rukus



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Sun Feb 12, 2012 11:27 am

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re "I have just been doing some reading on new treatments that may slow the spread of choroidal melanoma to other parts of the body,"

what i was saying ,, is that some might read that and think ,, oh i will die soon then!!!!

anyway just my opinion.

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Enucleation March 2010 london uk



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Sun Feb 12, 2012 11:49 am

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Hi Keith; that's why we have yearly liver test/scan/blood work done. It's good to know there is better treatment than chemo. Cheers vera

_________________
f/1952 cholodial melanoma
If there's no chocolate or chardy in heaven, I'm not going



Irish_in_Oz passed away on Februaruy 26, 2016.
She will be missed.
--
rukus



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Sun Feb 12, 2012 3:15 pm

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Search the internet and you get disasterous statistics on this disease. Not a good medical report to be found. Yet on this site you have people that have had this disease for 20 years or more and are healthy and happy. This site on its own is hope.

I do not want to focus on the negative aspects of this disease, but on the positive things that are happening and can be done to extend productive life expectancy, including my own.

As for being scared, I don't believe there is one person who was told they have eye cancer that wasn't scared. If they weren't, they don't really understand the disease.

We all have one doctor that we see a few times a year. I probably spent less than half an hour total with my doctor before he removed my eye. I was completey in his hands. I didn't know what to ask.

Cumulatively we spend a lot of time with doctors but we all know very little. I would like to ask my doctor the best questions I can and share the information with the group. I would like the group to ask then better questions and share that information as well.

I want to know how to survive this as long as I can and live the best life I can.

From what I can see, the internet is almost all bad. This site is full of survivors and is almost all good.

Scared doesn't mean powerless. Sick doesn't mean unhappy. Statistical studies do not indicate individual results. We need to remember that too.

_________________
Eye removed January 16, 2012 due to Choroidal Melanoma


Last edited by righteyeleft on Sun Feb 12, 2012 10:02 pm, edited 1 time in total.


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Sun Feb 12, 2012 8:13 pm

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HIYA...
The surgery on my eye was done by , the leading consultant at moorfields hospital London .. who works in ,oncology.
I have already asked her many questions indeed and received satisfactary replies....the removed eye was sent for a biopsy and the consultant
gave me exact information... so thats good enough for me....

I was having 3 month follow ups ,, then 6 months and now 9 months...

I noticed you only had surgery in january this year. so hope your feeling a bit better
,, Also i have to assume at some point your be given details about a prothetist eye, they are made to remarkable standards now.
keith,

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Enucleation March 2010 london uk



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Mon Feb 13, 2012 3:19 am

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Cancer or not ... ALL ARE SURVIVORS HERE.
:D

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eye migraines (blindingly severe) / last eye migraine : 27 AUG 2012
asymptomatic benign choroidal nevus left eye • monitored (since OCT 2011)



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Mon Feb 13, 2012 3:35 am

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Amen Nouska!

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Eye removed January 16, 2012 due to Choroidal Melanoma



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Mon Feb 13, 2012 4:26 am

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We are indeed Nouska xxx



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Mon Feb 13, 2012 7:46 am

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I appreciate reading this article Troy. I had never heard of eye melanoma before I came to L.E. And it's good to read everyone's updates and get to understand it all a bit better.
Cheers to all the survivors here at L.E

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