I've had 11 surgeries in my right eye for retinal detachment and then just about every complication one can get after the first surgery. Surgeon made many mistakes, terrible travesty, long story.... I've also had one surgery in my left eye for retinal detachment. I had a different doctor and he did a wonderful job, scleral buckle and vitrectomy.
1. I am 99% blind in my right eye but there is so much nerve damage that I think what's happening is that my right eye still flashes internally and I think it's sending signals to my brain. This was my dominant eye and I think what's happening is that my brain is interpreting these signals and it's causing my overall visual field to transiently fade in and out in tiny little splotches at random, so it's like a light fog that comes and goes. Doesn't go black, just grey/foggy. However I also have a cataract in my good eye (mild) and more importantly an epiretinal membrane that has started to contract and thicken. It's hard to tell if the visual disturbance is from the membrane. **has anyone experienced visual disturbance like this in an eye that has an epiretinal membrane and did removing the membrane fix it?
2 my right eye is shrinking and I need it either eviscerated or enucleated. I've been reading if evisceration is possible that is the preferred route, and also avoid the peg in the eye. Problem is, since the optic nerve will still be intact in that case, I'm worried this visual disturbance which is debilitating might not stop if it's indeed due to the right eye (and from what I see in my field of view I think it is... but, during an evisceration they remove everything in the eye, including retina and choroid, so maybe that will kill all blood supply and indeed the disturbance will go away.
3. Question on the implant... there is some risk of the implant extruding. What exactly does that mean. Also, I watched a video of someone putting an implant in, and those implants (covers that go over the eye) are huge! They are held in place basically by the skin around the eye, and the eyelid. Don't these implants hurt after they're inserted??? Won't your eyes get dry and then you'd get massive friction between implant and eyelid?? Can you feel the implant in the eye?? I haven't read about anyone complaining they can feel it, I am boggled by that. I HOPE I won't be able to feel it, but if I do can anything be done to stop that discomfort?
4. Finally, after an eye is removed, does one experience "phantom eye" phenomenon (like phantom limb)? If so, what is it like? Please describe it. Does it go away?
Thank you everyone for your help! I'm so depressed about all of this, I've had 12 eye surgeries already... I was handling it well until my good eye started acting flaky (the visual disturbance mentioned above). I really hope that's not due to epiretinal membrane on my good retina. There's also a lot of flashing in the periphery of my good eye (looks like cobwebs when it flashes), and I think this is leftover vitreous. I'm really worried that is causing traction and might tear the food retina. I mean it's definitely casing traction or else I wouldn't see any flashing. Doctor says don't worry about it but the flashing went from zero two years ago to major flashing now... ugh! I hate all this. I'd give everything to go back to before all this happened. 4.5 years now... thank you all!