Hi: a few people on the site who have had the blocker do not recommend it; they had further problems; cheers Vera

Thx for info appreciate it.

Does anyone know if anyone with ptisis has had it cured and eye grows or once it has shrunk it has shrunk.?

Or can the pain evenually stop?
Irish angel found out who i need to speak to i Moorfirelds a Mrs janne Olver and a mrs Sarah Jones.

hi mate i've got a eye that gone into ptisis .About a month ago i askedthe doc at sussex eye hospital the same questions. He told me an eye is way past help in the ptisis stage and keeping the eye pain free is the aim.

I metioned eye removal but he was confident that they could keep me pain free.Though i'm toying with removal.I'm fed up with inflammation, eye drops.

Mind you phitisis bulbi is well treated with evisceration. i've spoken too a few ocularist who advised me to go this way if possible due to increased motility.

I'll probably keep the eye/shell option though i think removal is inevitable one year or ten who knows.It's a difficult call be nice to end this eye crap and crack on with life.

On a lighter note are you .a red i'm still buzzing after torres hatrick

Eye doctor told me my eye has not gone into Phitis bulbi (spelling) but there is nothing they can do. But they dont say defo not and i have seen loads of doctors and they all say possibly but wont do anything. I say to them "you tell me that there is no chance of getting any sight in my bad eye and i will accept it" , but they never say no, but just wont do anything. Before my operation i seen doctors from loads of hospitals and they said "come and see me when you have got the adhesions from your eye lid to your eye sorted out". But you never get to see them again.

And they say to me "if my right eye went they would try and get sight in my left". Well that tells me there is cance. So i should be able to make the decision.

If you get your eye eviscerated does and have a cosmetic shell put on does it move the same as having a whole eye or do you lose some movement.

I had mine eviscerated...they (my ophthalmologists) wanted to do an evisceration opposed to an enucleation because the evisceration is more cosmetically pleasing. Because your muscles are still attached, your prosthetic moves better...while it is not as great as your original, it is better.

Other than the chronic pain, by biggest complaint is the "sunken in" look. That apparently can happen with either enucleated or eviscerated eye.

forgive me guys; but I had enucliation and I was under the impression I still had my eye muscle ; my falsey moves well!! I'm now confused; cheers Vera

Hi Vera,

With enucleation, they still save the muscles. So you do have your muscles. I had the enucleation and have my muscles as well, but because of severe deterioration of my eye, my muscles were damanged and that is why mine doesn't move well, but there is "some" movement because the surgeon tried his best to save what he could. I don't have movement range, but my eye will "flutter"

They will take the muscles and attach it to the implant.

Christy

I had my Enucleation back in March...They Attached the Muscle to the coral inplant. I have movement too, but my Prosthestic eye doesnt move UP when I look up, I just try to avoid looking up. No Big Deal.....But Yes you keep the Muscle. Kendra

Thanks gals; I was getting confused and didnt want to call my specialist and sound like a looney tune asking questions 8 yrs later my muscle was obviously still in good condition as I have very good movement with falsey; thanks Vera

The difference is that with an evisceration, the muscles can be left alone but with an enucleation, they are cut and attached to the implant with variable results. Some are excellent while others deteriorate. An evisceration also doesn't usually result in much loss of fat around the socket avoiding the sunken look that occurs more often (but not always) with enucleation.

Thanks for clearing that up...sorry guys - was misinformed about the muscle issue in an enucleation. It appears that sunken in look happened anyway in my case even though I had the evisceration!

By the way, since I last posted, I was seen be even more specialists. I hate to post after the mis info about muscles, BUT if you have suffered with pain for a long period of time...look into the terms "central sensitization and neuroplasticity", particularly articles written by Harvard doc Clifford Woolf. They have found that this is what has happened in my case. Long term pain and trauma can cause changes in your central nervous system and even cause changes in your autonomic system due to damage to your dorsal horn. Don't trust me -- look it up yourself. It could mean the difference between being living a productive life or not.

Blessings.

Hi, I'm Janelle. I've been reading post here for about 1 1/2 years. My retina detached in my left eye in Sept 2005 and since then I've had 5 retina related surgeries and 1 cornea. I only have a bit of light/motion. My eye has definately shrunk some. I have silicone oil in it because I wasn't able to regenerate the liquid on my own and my eye started to shrink.
I have suspected that I may eventually lose my eye with the shrinking thing but I haven't had to cross that bridge yet. I also have band keratopathy. I had the calcium removed in May and will have to have it removed again in the next month or two.
I am a computer programmer and have worked for the same agency for 23 years so I was lucky to have a job to go back to after 4 months at home. My family and friends have been great thru it all but it has definatly been a roller coaster.

I've enjoyed all of your posts. Janelle

Hi Janelle...sounds much like my son, Tyler. He has had numerous retinal surgeries, lensectomy and residual glaucoma surgeries. The scarring from all these surgeries caused a massive band keratopathy for him also. When this flakes off, it is unbearable pain for him. Apparently, nerve endings are attached to the calcium deposits. We are on the verge of removing his eye next month as his prognosis is not good. He no longer has any light perception or vision in his left eye. I am slowing coming to terms with this as he is only 11 years old. I am hoping and praying that this will be the last eye surgery he will ever have to endure. I wish you all the best. Welcome to this forum.

Teresa

Hi Janelle; welcome to a great bunch of very supportive people; Teresa how r u and Tyler doing; I hope u r having some free time to yourself and you have great family and friends who support you every day; Best wishes; Vera

Hi Teresa and Vera

Teresa I've read about you and Tyler. I was surprised Tyler was able to wear a shell/contact for any length of time with the calcium. As it gets worse it makes my whole eye hurt especially above. I was amazed when they removed it in May. They took it off on a Thursday using twilight sleep. I took pain pills thru Friday and by Saturday hardly needed Tylenol. I hadn't realized how much the calcium was hurting. I thought much of the pain was from my eye in general since it has so many issues. I had about 4 months relatively pain free time but the band started making itself known again in mid August with occassional twinges. This last Friday it was pretty bratty. I suspect it will need cleaning in November.

I think Tyler is very brave and he is only a kid dealing with this, I'm 50. If he is like me when it is hurting he's probably tired all the time. Best of luck in all of this. Janelle

Actually Janelle, Tyler complained about the shell from Day One. It hurt him terribly. But.....he also had a very terrible attitude about it going into it so I suspected that he was just being difficult. I now realize how stupid I was and I feel terrible for forcing him to endure that pain. The Scleral Shell caused the calcium deposits to chip off and cause him excrutiating pain.

I had considered just having the Band Keratopathy removed. But that doesn't address the shrinking of his eye and the pain associated with that. Our only one good option is to remove his eye for pain control and the eventual cosmetic need as he grows into those teenage years. The eye will not regenerate, will not regrow to an appropriate size and he will never see out of it.

Now I move forward and pray that we do not have the residual complications from this surgery. I am losing sleep and am going to drive myself crazy in these coming weeks with worry. He's my angel and I cannot bear to see him go through this.

You wouldn't have known about the pain cause I'll tell you I certainly wouldn't have thought some stupid calcium could hurt like my does. My eye has shrunk some also and I suspect I will eventually lose it. At this point they can remove the calcium as needed and my new eye doctor has mentioned she can stitch placenta material over my cornea. I need to ask more questions about the benefits of that. She knows a cornea transplant isn't possible because that would mean removing the silicone oil and my eye structure can't survive that. Her philosophy is to keep my left eye as stable/healthy/pain free as possible and to agressively watch my right eye which so far is healthy.

She has also suggested a shell. I'm not sure after hearing about Tyler if I would try it. Maybe that is where the placenta material comes in. I would only be able to wear it between the calcium removal and it's regrowth.

I just had to change eye doctors. My retinal specialist is limiting his practice to pediatric retinas only as he is taking on new duties at the university. I've been with him since the adventure started 2 years ago. I was pretty nervous with the change. I like the my new cornea doctor and I see the new retina guy in November.

Teresa, I think your logic is good. The pain can wear you out and as losteye has demonstrated (and I have a good friend who lost her eye 24 years ago) cosmetically they have some great results. Tyler has already demonstrated he is very resilient so quit worrying yourself sick and get some sleep. By the time Tyler hits his teenage years he'll be a pro with his new eye. It's 11 pm on the west coast so it's off to bed I go.

The pain in my bad eye was due to stress and has now gone. My eye is blind but pressure is good and no pain. I am preparing myself for the future in case it has to be removed. My eye doctor said he has removed 1300 eye and some doctors might say eviseration gives more movement but he doesnt believe it. As for the sunken in look, surely that can be fixed with a bigger implant?

Hi there

When you say placenta have they said it is a amniotic membrane?